Despite my extensive experience with Special Needs children, as a parent I was unprepared for how utterly alone I would feel in this journey, how all consuming this life would be. Many years were spent sequestered in a hermetically sealed-off house to ward off untenable noises. Anything but predictable, life was laced with temperamental outbursts, unexpected seizures, early intervention programs where hopes were lifted and simultaneously dashed, the perpetual hunt for appropriate schools and programs, the lone house on our block where the short bus stopped. We never left home without Plan B, rarely venturing out as a family of four.  → Read More